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 Wife has improved

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Punk Pony

Joined: 06 Jul 2007
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PostPosted: Thu Jul 23, 2009 10:26 pm Reply with quoteBack to top

Looks like the prayers from the great members on this site are having a positive result.

The doctors are very pleased with my wife's progress, after 4 weeks, soon be moved to Rehab, now have arranged transport, for her to attend our son's wedding on August the 9th(Sunday).

Still has mood swings, like going up and down on a roller coaster.
The Encephalitis Society have a well put together web site.

Found this poem, written by a sufferer, its a great help.
Sorry its a bit long.

I sat in the dark, head all fuzzy….
I’m feeling rather rough, that aint like me.

My heads gonna blow, can’t stand the pain,
Oh bloody hell, here it comes again…

I wake up weird I can’t see too well,
Am I in hospital, I think, but I can’t really tell…

Yeah there’s the wife, mum and dad,
What’s up with them they all look sad?

I got a mask on oxygen thingy,
Ewww it stinks like a sunken dinghy!

Bloody hell I'm sitting here nude!
Stretch marks, arse on show, sorry to be so crude…

Could you cover me up, I’m getting cold,
Oi listen to me, what’s that their being told?

The doc shakes his head, he’s looking glum…
But I don’t really care, just cover me bum!

Has he had any drugs? Or alcohol too?
He’s in a kind a coma, could be a week or two…

Before he’s awake, if we are lucky,
NURSE! Get a pad, he’s done a mucky!

Bloody hell, why won’t they hear me?
I’m trying to shout, there so near me…

What’s that I realise, my mouth won’t move?
OI! What that nurse planning to do with that tube?

All my gawd, it’s going dark again,
I’ve been out cold, I don’t know since when.

I’m feeling great, jeez my gut rumbles,
What happened doc, did I take a tumble?

We don’t quite know, we are baffled the doc said,
But we think there sumin funny going on in your Ed!

That night I went to sleep, tossed and turned,
The pain in my head oh my how it burned…

Visions I had all creepy and scary,
Great big spiders all big n hairy…

Feeling rough my head is spinning…
All I hear is the snores of other patients and the drip; drip dripping

A week passes I've had all sorts of tests,
A doctor comes down from London to visit me in bed.

He said; a brain tumour is what I think,
That’s why you’re having seizures, and hit your head on the sink…

Oh blimey I thought, this is it…
I’m a good guy, it wasn’t meant to turn to shit…

Down in an ambulance to a specialist unit,
We can chop of your head, and see what’s in it!

Loads more tests, needles and scans…
I had so many X rays I should have had a tan!

Then sumin dawned on me, I’m stuck in my head,
No way of getting out of this bloody bed…

So I imagined a world where I was better,
No more sleeping in pooh, or being a bed wetter…

Where I could move my legs, and see my wife,
A world where I lived a normal life…

Diagnosis came, no tumour but meningitis, encephalitis and a stroke,
Brain overload, it had enough, it had broke…

I stayed in this little of world of mine,
So healthy, loved and imbued with time…

Within a week, I was allowed to sit on the pan,
Was a great feeling I was the man!

The docs did well, reduced the brain swelling,
If they hadn’t had succeeded, there would have been no telling…

Of how long I would have gone on for, or survived….
But I should have felt happy that I was alive…

Determined and willed, I walked on a Zimmer,
I gotta get outta here, I hate hospital dinner….

In weeks I learnt to walk with a stick,
If I needed a pee, I even went quite quick…

I still kept that little world in my mind,
I really didn’t want to stay that blind…

Will in my head, fire in my belly,
I was determined to once again watch the telly!

Soon it came that I could see,
My ugly face in the mirror staring back at me…

I lost the stick, and hugged my wife,
Still in my head that neat lil life…

So nearly a year has passed since that day,
That someone took my life away…

Left me with no memory, no job, no life,
And filled my days with fighting and strife…

I still have trouble with moving and thinking,
Ended up with brain damage, as my brain was shrinking!

Some IQ tests I reached 132!
But some days I can’t even tie my shoe...

It doesn’t make sense, there’s no rhyme or reason,
Why did it happen, especially over the festive season…?

So Christmas approaches again, once more,
And I am determined to give god what for…

I was a good guy? I weren’t meant to be struck down!
I can imagine him looking back, all beardy with a frown…

“I told you 100 times relax, slow down,
You didn’t listen, you ignored me, you bloody clown…”

But I’ve got no strength, no peace of mind!
“Give it time, again you will find…”

But I can wake up and forget my name!
And I daren’t call the wife the wrong name again!

She’s done so much, caring for me and baby,
Then show her your gratitude god said, “don’t be lazy….”

“That lil world inside your head,
That’s the reason you’re not dead!”

“You wish you were dead, cos ya can’t recall,
Or your legs don’t work right, and that you had a fall”

“Look at it this way; you’ve got a new chance to get it right,
You lost the good, but also the bad that kept you awake at night…”

“So keep on plodding and make it real,
You’ve done ok, so let’s make a deal…”

So god offered to give me the power,
To improve myself, minute by minute, hour by hour…

If I did wrong, I would hear his voice,
But ultimately, in the end, it was my choice…

“Sit and stew, feel like hell
Or stand up and be counted and ring that bell…”

“Tell em that you’re doing the best you can,
And through all the pain you’re still the man…”

“And if you do wrong, fall or feel a fool,
Deep inside you, you’ve got the tool…”

“To continue your journey, in yourself believe,
Of these bonds you can be free…”

“Soon you will be ready to face the action,
Excuse me now, I gotta go sort out Michael Jackson…”

So off god went, I sat there bemused,
Didn’t expect it to happen that way, I’m a little confused…

But for now, I fight, I continue my path,
Happy I don’t need supervision when I’m taking a bath

There’s so much I lost, but then so much I gained,
Sometimes life is hard and sometimes it’s pained…

But I keep on plodding at my own speed,
Realising that I have lost all the need…

For money, for possessions, material things
And all of the trouble that theses things bring…

I received a gift, from those above,
I received a good en, I received love,

Maybe not from the gods, the universe or even you,
What I got from my family & friends was too good to be true…

But I’m reminded of my own little world, those dreams,
The visions I created to repair my brains seams…

To do that, I must have like myself quite a lot,
I must’ve loved myself, or I would have left me to rot…

So bear in mind when your body says ow!
If it heals, its proof in the here and the now,

That you love yourself more than you ever did know,
And that your seeds, with care will eventually grow…

I don’t intend to return to where I was,
To me I was in the wrong place, cos;

If I were meant to be there I still would be,
But I never listened to the signs, I ignored me…

So from now on, I listen to my over worked brain,
When it says slow down, you won’t get away with it again…

Please take my advice and you’ll be just fine,
When your head speaks, don’t ignore the warning signs….

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PostPosted: Thu Jul 23, 2009 11:25 pm Reply with quoteBack to top

I am so happy your wife is doing better, Fo'andles! I will continue to keep her in my prayers for her continued recovery while in rehab. Be sure to take good care of yourself too. Very Happy

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PostPosted: Thu Jul 23, 2009 11:38 pm Reply with quoteBack to top

im lost for words

edit : Titania below found the exact words below.

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Last edited by smartbomb on Fri Jul 24, 2009 1:25 am; edited 1 time in total
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PostPosted: Fri Jul 24, 2009 12:39 am Reply with quoteBack to top


Just ... WOW!

That poem says everything. It is appropriate for a lot of traumatic and catastrophic situations. Thank you so much for sharing it!

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PostPosted: Fri Jul 24, 2009 2:11 am Reply with quoteBack to top

I'm so glad your wife is better, Fo'andles! Cool

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PostPosted: Fri Jul 24, 2009 4:43 am Reply with quoteBack to top

The poem certainly does say it all. I am so happy to hear your wife is doing well and able to attend the wedding, Fo'andles. Best wishes and much love to both of you.

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PostPosted: Sat Jul 25, 2009 6:38 pm Reply with quoteBack to top


That you even 'went there' looking for solace says a lot about you. Every day in life I deal with people who simply will not do that..(denial), including myself, when it comes to family and cherished ones.

And yes, no matter what form they are in, positive thoughts, prayers, mantras, name it what you will, have healing powers.

All the best to you and your wife at your son's Wedding on August 9th. I will remember the date.

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PostPosted: Sat Jul 25, 2009 8:50 pm Reply with quoteBack to top


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PostPosted: Sun Jul 26, 2009 10:23 am Reply with quoteBack to top

Best Wishes to you and your family
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PostPosted: Mon Jul 27, 2009 3:33 am Reply with quoteBack to top

Fantastic news! I'll keep you and her in my prayers. Stay positive!

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PostPosted: Mon Jul 27, 2009 3:49 am Reply with quoteBack to top

It is so great to hear that she is doing better. Thanks for sharing the poem!

Sending tons of positive energy your way...

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PostPosted: Mon Jul 27, 2009 5:43 am Reply with quoteBack to top

This is great news. I hope she continues to get better with each passing day and treasure each new day like never before.

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PostPosted: Mon Jul 27, 2009 7:57 am Reply with quoteBack to top

Glad its going well fella, Hoping for a speedy recovery, Look after yourself!!

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